Wednesday, November 14, 2018

There's HOPE in this Health Update

The EXCRUCIATING leg pain that has been unrelenting for months is so much better today. I could do backflips, although I hesitate to be so hopeful. What happened? Well, we put me back on a medicine to help the dysautonomia (I'm not holding water again)...a medicine that just happened to help the weird leg pain years ago...and hot damn it's working.

Incidentally, it was so validating to see my autoimmune disease on the ultrasound yesterday. "There it is," said Dr. Moon. "We finally caught it." Reactive/Psoriatic Arthritis - Humira is gonna work!

Add that to Dysautonomia, Myesthenia (VGCC+), Adrenal Insufficiency, Pituitary Dysfunction, Small Fiber Neuropathy, and other've got one badass mixture of stuff that only the big guns (IVIG and Humira) can fix.

Do I have a Diagnosis? Yes - Several.
Am I healing? Yes - Slowly.
Will I ever be fully "recovered?" - Who the heck knows - I am on God's path. But, I love myself regardless. Finally.

Next step - drop the Prednisone with the IVIG down another 25 mg and hope to God (literally) that there isn't an anaphylactic reaction.

In the mean time, I have a goal - two more walks and a groom of Harvey, then I get to ride my warhorse

Original art by Heather Thompson Blue Phoenix Art

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