Monday, September 10, 2018

My New Work Day

Starting my "work day"....

People come downtown for their jobs every day, but beneath the usual hustle and bustle of the able bodied are those if us that make the trek downtown for one reason...healing. For us, the medical journey is our job. Treatments, tests, appointments all take a great deal of time and energy when you're fighting for health. And the days at home are spent recuperating so that you can keep running the marathon that lies ahead.

Unless you know where to find us, you might not even think that we are in the city amongst the law firms, tech giants and designer shops. In this sense, we are largely invisible. But we are here.

So today I packed my Tumi rolling bag that used to accompany me on long flights in my entrepreneurial days....and I await the start of my NEW work day. I'll be here for 8 hours. In fact, every three weeks I spend five FULL days in the infusion center getting my ivig treatment.

I am not gonna lie, the treatment isn't easy.  IVIG is life saving, and potentially curative for me, but it comes with a whole host of side effects.  Add to it the big needle that they use to access my port each time, and I'd say that my workday is pretty badass.

Truthfully, though, I feel deeply grateful. One year ago, I had no idea what was wrong with me...and that was truly terrifying.  I have since learned so much, and I feel held in a cone of grace that continues to give me strength for the journey.

I'm choosing to be seen these days. I no longer wish to hide. I am invisible no more.

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